INFORMACIONES PSIQUIÁTRICAS 247
Informaciones Psiquiátricas 2022 - n.º 247 33 this burden may be different. In this sense, tools such as the FBIS (40) the Zarit burden interview (41) or the Family Experiences In- terview Schedule-FEIS (42) allow us to ex- plore different aspects of caregiver burden and see which tasks, responsibilities and concerns generate the greatest burden. Caregiver burden, refers to the strain en- dured by a person who cares for a chronica- lly ill individual (4), could be summed up in a single value that many authors have rela- ted to different factors, such as individual characteristics of the caregiver, dynamics and type of family, socioeconomic status or type of illness (12-14,34). This point is im- portant but it is also important to know the distribution of the objective and subjective burden among the different responsibilities and tasks. In our sample, as in other similar studies (7, 9-11,14-17, 24, 27-35, 37, 43, 44), it is assistance in keeping to schedu- les and times (55.8%) and household chores (55.4%) that require the most interventions and also cause the most discomfort. ADL’s (Activities of Daily Living) are very impor- tant and, if they are not performed, are detrimental to the person's well-being and their life and social project (45). Thus, lack of personal hygiene has repercussions on group meetings or attendance at a training session, a choral session or a class, and has a negative impact on a job interview. In this way, concern for the patient's future goes some way to explaining the frequency with which these tasks associated with ADL’s are performed (Table 2). In addition, these ty- pes of tasks have the greatest influence on the objective burden of care and the dis- comfort they cause, including changes to the caregiver's weekly routine, economic burden incurred (Table 3), and a perception of lower social support (total value on the Duke scale). In other words, concern gives rise to greater dedication, and this in turn generates greater discomfort and concern. Containment of suicide risk and interven- tion for disruptive behaviors take up little time but generate concern and distress in the caregiver, have a detrimental effect on his or her health (Table 3) and have a negative impact on the family relationship, leading to further caregiver intervention (46, 47). The majority of caregivers are permanently or frequently concern about the patient's fu- ture, social life and daily life (48). In this study, this concern is explained (40% of the variance) by the subjective discomfort felt by the caregiver in carrying out of care for daily activities and the objective interferen- ce of caregiving in the relationship with the patient (Table 2). The majority of caregivers consider the mental disorder to have a ne- gative impact on the individual and family relationship with the person with the di- sorder, which generates a high level of dis- comfort in some caregivers (29.5%). Care for daily activities may be the direct agent mediating between any factor and the impact on caregiver burden. In other words, carrying out tasks to cover basic ne- eds and intervening in situations of suicide risk or behavioral disorders cause concern and discomfort for the caregiver, which re- sults in a greater number of interventions, closing a vicious negative feedback cycle of concern>repetition of tasks>disturbance that overloads the circuit and results in ex- haustion for the caregiver. CAREGIVER BURDEN AND PERCEIVED SOCIAL SUPPORT OF THE MAIN CAREGIVER OF PEOPLE WITH SEVERE MENTAL DISORDER IN CATALONIA: TYPE OF CARE TASKS AND ASSOCIATED DISCOMFORT
Made with FlippingBook
RkJQdWJsaXNoZXIy MzkyOTU=